This page is a resource for those with Ehlers Danlos (EDS) as well as for individuals who have family members with the illness, or who suspect they may have this diagnosis.  Here you will find yourself able to connect to websites, find groups, book suggestion, and product suggestions.  I will attempt to update this page.  I look forward to getting to know you and to know how I can be a resource for you as well.  I know that each individual's journey with a medical diagnosis is different.  EDS is no different.  

I currently am happy to accept referrals of patients with Ehlers-Danlos syndrome and other connective tissue disorders as well as other pain syndromes, dysautonomias including POTS, and chronic illnesses.  My treatment model is strengths based, multi-modal and patient focused. This is ideal for the Ehlers-Danlos patient who is so often misunderstood by the medical community. I also do consultation and advocacy work for families requiring assistance with school 504 and IEP plans for their children or any individual who wishes to make adjustments to his or her own daily functioning. I am committed to working closely with all of my patients' providers as they find helpful.

In addition to treatment, I know the EDSer is often eager to search for information and help independently. 

I hope you find these resources useful. 

• Ehlers Danlos National Foundation  (this link will bring you to a page with multiple site resources as well as links to join the EDNF facebook group and to join Inspire, the Ehlers Danlos online community.)     http://www.ednf.org/index.php?option=com_content&task=view&id=2234&Itemid=88889295

• For Genetic Testing, The Center For Human Genetics, Inc. in Cambridge, MA (currently testing is available for EDS Type I, Type II, and Type IV) ,  http://chginc.org/

• for a universal experience of EDS and a bit of humor, check out Hannah Ensor's, You Know your Have Hypermobility Syndrome When...(2009)   This is also the link to Hannah Ensor's website where you can find her blog and so much else.  NEW:  Hannah has new cards and as well as stickers.  Well worth checking out!!!  http://stickmancommunications.co.uk/

• Also a great book.  Hypermobility, Fibromyalgia, and Chronic Pain (2010) by Alan Hakim, Rosemary Keer, and Rodney Grahame. 

• This is a link to an incredibly thorough article about Ehlers Danlos/JHM.  It may be useful to explain it to providers not familiar with the extent of the illness as well as members of school teams and others.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3512326/

• NEW:  A Multidisciplinary Approach to Managing Ehlers-Danlos(TypeIII) - Hypermobility Syndrome  Working with the Chronic Complex Patient (2013) by Isobel Knight   

For more information about this book, click on the image to be linked to its Amazon site.